Resources

Dealing with the emotional and practical aspects of advanced breast cancer can be challenging. The tools listed in this section are meant to help you address some everyday issues.

Check out the below materials to learn more about advanced breast cancer

  • Advanced Breast Cancer by the Numbers

  • Advanced Breast Cancer Then and Now

  • All About Us

  • Early versus Advanced Breast Cancer

  • Frequently Asked Questions about Advanced Breast Cancer

  • Know Your Type

  • Make Your Dialogue Count Tip Sheet

  • The Psychological Impact of Advanced Breast Cancer

Advocacy Organizations

These advocacy organizations have a wealth of available information, including dictionaries, toll-free hotlines, in-person support meetings, and frequently asked questions to support people living with or affected by advanced breast cancer.

  • AdvancedBC.org

    Metastatic breast cancer information and support for patients, family members, and friends.

  • Breastcancer.org

    Your lifeline to information about breast cancer.

  • BreastCancerTrials.org

    BCT is a nonprofit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care.

  • Breast Cancer Research Foundation (BCRF)

    BCRF is determined to achieve prevention and a cure for breast cancer in our lifetime by providing critical funding for innovative clinical and translational research at leading medical centers worldwide and increasing public awareness about good breast health.

  • Cancer Hope Network

    Cancer Hope Network provides free and confidential one-on-one support to cancer patients and/or their family members.

  • CancerCare

    CancerCare offers limited financial assistance, educational programs, publications, and online and telephone support groups without cost.

  • Cancer Support Community (CSC)

    In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. By helping to complete the cancer care plan, CSC optimizes patient care by providing essential, but often overlooked, services including support groups, counseling, education, and healthy lifestyle programs. Today, CSC provides the highest quality emotional and social support through a network of more than 56 local affiliates, 100 satellite locations, and online.

  • The Inflammatory Breast Cancer (IBC) Network Foundation

    The IBC Network Foundation was founded to encourage inflammatory breast cancer education and research.

  • The Inflammatory Breast Cancer (IBC) Research Foundation

    The IBC Research Foundation seeks to assist scientists and researchers in their quest to determine the definitive causes of inflammatory breast cancer so effective and meaningful detection and diagnosis, prevention and treatment can be pursued and achieved.

  • Living Beyond Breast Cancer (LBBC)

    Empowering all women affected by breast cancer to live as long as possible with the best quality of life. Educational programs and support services include lbbc.org, the LBBC Survivors’ Helpline (available at 888-753-5222), the Understanding Breast Cancer guide series, national conferences, free teleconferences, quarterly newsletters, publications for medically underserved women, healthcare provider trainings, and an extensive program archive.

  • Men Against Breast Cancer (MABC)

    MABC is the nation’s first and only national 501 (c)(3) nonprofit organization designed to provide targeted support services that educate and empower men to be effective caregivers when breast cancer strikes a female loved one. We help men be there for the women they love. Since our founding in 1999, MABC has mobilized men across America, including underserved populations, to be active participants in the fight against breast cancer. Our philosophy is to leverage the support of the whole family to help the patient and the family navigate the crisis of breast cancer.

  • Metastatic Breast Cancer Network (MBCN)

    A national, patient-led organization that provides information and education to women and men living with metastatic breast cancer and their caregivers. MBCN works to end the isolation of those with metastatic disease and offers strategies for those living with the disease through information on their website (mbcn.org) and by hosting an annual National Metastatic Breast Cancer Conference. MBCN is fighting for more treatments to extend life and make metastatic breast cancer a truly chronic disease.

  • METAvivor Research and Support

    From support groups to funding vital research, our programs sustain the power of hope. Passionately committed patients ourselves, we rally public attention to the urgent needs of the metastatic breast cancer community, help patients find strength through support and purpose, and make every dollar count as we work with researchers to regain longevity with quality of life. Regardless of where you are in your journey, we can assure you we've been there too. Reach out to us. We are here for you.

  • SHARE

    SHARE supports, educates, and empowers people affected by breast or ovarian cancer, with services specifically targeted to those living with metastatic disease. We help people face their feelings and fears, communicate effectively with their doctors, and make informed decisions about their health. All of SHARE's services are free of charge, confidential, and provided by people living with these diseases.

  • Susan G. Komen for the Cure

    Dedicated to saving lives and ending breast cancer forever by empowering people, ensuring quality care for all, and energizing science to find the cure.

  • Young Survival Coalition

    Premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer.

  • SHARSHERET

    Sharsheret supports Jewish women and families facing breast cancer nationwide. Sharsheret’s Embrace program for women living with advanced breast cancer offers individual counseling sessions by phone, a telephone-based support group connecting women with healthcare professionals and with each other, and resources specific to women living with advanced breast cancer.

  • Sisters Network

    Committed to increasing local and national attention to the devastating impact that breast cancer has in the African-American community.

  • Breast Cancer Now

    United Kingdom

    US
  • Breast Cancer Society of Canada (BCSC)

    Canada

    US
  • Canadian Breast Cancer Foundation (CBCF)

    Canada

    US
  • Canadian Breast Cancer Network

    Canada

    US
  • Canadian Cancer Society (CCS)

    Canada

    US
  • CanSurvive

    Egypt

    US
  • EUROPA DONNA, The European Breast Cancer Coalition

    Europe

    US
  • European Cancer Patient Coalition

    Europe

    US
  • Federação Brasileira de Instituições Filantrópicas de Apoio à Saúde da Mama (FEMAMA)

    Brazil

    US
  • Fundación Oncológica de Cáncer

    Chile

    US
  • Instituto Oncoguia

    Brazil

    US
  • Movement Against Cancer (MAC)

    Russia

    US
  • Movimiento Ayuda Cáncer de Mama (MACMA)

    Argentina

    US
  • People Living with Cancer (PLWC)

    South Africa

    US
  • Rethink Breast Cancer

    Canada

    US
  • Saudi Cancer Foundation

    Saudi Arabia

    US
  • Simmon Foundation

    Colombia

    US
  • Willow Breast Cancer Support Canada

    Canada

    US

Finding Emotional and Financial Support

As someone living with advanced or metastatic breast cancer, it is likely that your needs will change over time. Sometimes it’s useful to connect with others who understand what you’re going through, and surround yourself with a support system.

There are several online forums where patients, caregivers, supporters, friends, and family members can meet and support one another.

The Advanced Breast Cancer Support Community, one online discussion forum, is brought to you by Inspire, a company that builds online health and wellness communities for patients and caregivers in partnership with national patient advocacy organizations. It is separate from advancedbreastcancercommunity.org and is not sponsored by Novartis. The site was created to bring together those living with advanced breast cancer and those who are supporting them in their journey. Become a member of this free online discussion forum today and receive regular updates about health topics you care about.

There are many other online resources available to help you cope with the emotional and physical stress of advanced breast cancer.

  • After Breast Cancer Diagnosis

    CancerCare

  • Discussion Boards

    Breastcancer.org

  • Guides to Understanding

    Living Beyond Breast Cancer (LBBC)

  • HER2 Status

    Breastcancer.org

  • HER2-Positive Breast Cancer

    Mayo Clinic

  • Hormonal Status

    Young Survival Coalition

  • Join a Cancer Support Community Online Support Group

    Cancer Support Community (CSC)

  • Message Board

    Susan G. Komen for the Cure

  • Metastatic Navigator: A Young Woman’s Guide to Living with Metastatic Breast Cancer

    Young Survival Coalition

  • Online Support Groups

    CancerCare

  • ResourceLink Guidebook

    Young Survival Coalition

  • Support and Stories

    Brainmetsbc.org

  • The METAvivor Blog

    METAvivor Research and Support

  • The Progress Report

    Breast Cancer Research Foundation (BCRF)

In-person support can go a long way with helping you cope with your advanced breast cancer. Below are organizations that offer in-person support groups; visit their sites to find a group in your area.

  • Face 2 Face Networking

    Young Survival Coalition

  • Find Support

    Cancer Support Community (CSC)

  • Face-to-Face Support Groups

    CancerCare

  • In-Person Groups for MBC

    Metastatic Breast Cancer Network (MBCN)

  • Resources List

    Brainmetsbc.org

  • Support Groups

    SHARE

If you prefer support over the phone, there are helplines and hotlines available.

  • Breast Cancer Helpline

    Living Beyond Breast Cancer (LBBC)

  • Helpline

    Susan G. Komen for the Cure

  • Hotlines

    SHARE

  • Telephone Education Workshops

    CancerCare

Advanced or metastatic breast cancer can have an economic impact on patients and their families. Insurance deductibles, copayments, and logistical costs such as transportation, additional childcare or pet care costs, and home assistance add up. At the same time, patients and caregivers find themselves taking time off of work to manage the disease and worry if this means they’ll lose their job. Below are some resources from independent organizations to that may be of assistance in lessening the burden for you and your loved one.

  • Access and Affordability

    PhRMA

  • Advance Directives

    National Cancer Institute (NCI)

  • Air Transportation Assistance

    Corporate Angel Network

  • Assistance Programs

    Patient Access Network (PAN) Foundation

  • CancerCare Co-Pay

    CancerCare

  • Co-Pay Assistance

    The Assistance Fund

  • Co-Pay Assistance Program

    Leukemia & Lymphoma Society

  • Co-Pay Relief

    Patient Advocate Foundation

  • Estate Planning

    Disability Rights Legal Center

  • Financial and Practical Support

    Breast Cancer Network Australia

  • Financial Assistance Program

    CancerCare

  • Financial Support

    Cancer Research UK

  • Get Assistance

    Healthwell Foundation

  • Insurance and Financial Issues

    Susan G. Komen for the Cure

  • Patient Services

    Good Days

  • Patient Services

    Patient Advocate Foundation

  • Prescription Assistance

    Partnership for Prescription Assistance

  • Road to Recovery

    American Cancer Society

  • Taking Charge of Money Matters

    American Cancer Society

The Linda Creed Foundation, a local 501 (c) (3) group in the Philadelphia area, was one of the initial contributors to advancedbreastcancercommunity.org. This group may be able to assist women with funding for mammography and navigation services in the Philadelphia area.